Let's Talk About Chronic Illnesses!

So, as most of you know, I was recently diagnosed with Crohn's disease. There are a lot of misconceptions, well-intentioned but harmful comments and behaviors, and other things not to do or say to someone with a chronic illness. So, let's go over some, shall we? (Of course, I don't speak for every person with a chronic illness, as they are all different and people are all different. If someone else with a chronic illness has other thoughts, feel free to add them to the comments and I can adjust this post.)

1) Being diagnosed ≠ when you got the disease. I was diagnosed with Crohn's in May of 2012. I had surgery for it in August of 2012. Many people have said to me, "But if you got it in May, why are you having surgery so soon?" Fun fact: I didn't get Crohn's disease in May. I've had it for years (possibly my whole life). I just couldn't afford to go to a specialist to get diagnosed until I was 23. I remember when I was 15, going back and back and back to my family doctor, who just insisted that I take laxatives every day (which didn't really help). Then I remember having a flare up my first week back to college sophomore year, and the hospital told me I probably had ovarian cancer (????), then ran a test and saw that I didn't, then released me 5 hours later when I stopped vomiting. Top notch care, that is. By the time I did get diagnosed, permanent damage had been done and less invasive treatments weren't working, so surgery was my most viable option. But on that subject...

2) You do not own or control my body. Why do people (especially acquaintances/strangers) seem to think they get to have a say in my treatment? "You know surgery is permanent, right?" Whaaaat?! You mean I won't just regenerate 10" of my small bowel?? I had no idea! Thank you, stranger, for letting me know the risks of a surgery that you've never performed and have no experience with. Same goes for medications or other treatments. "That pill is really harsh on your body, are you sure you want to be taking it?" If a doctor has prescribed me a medication or treatment, and I've agreed to it, it means the benefits of it will outweigh the harm (barring something major or unpredictable, like an allergic reaction). If you want to sympathize with me, that's fine.

"Oh, you're on prednisone? That's rough, I was on it a few years ago and I hated it. I'm sorry you have to deal with that." = Nice and supportive.

"Oh, you're on prednisone? You know it causes [x] side effect, right? You should have your doctor put you on something else." = Not okay.

3) Praying for me is okay. I won't be mad if you say that you're doing that, even if I don't believe that prayer does anything. But know what's better? Offering to help me. Don't be pushy, because sometimes there's not really anything you can do, but there definitely are times when you can help. My partner Sean has been incredibly wonderful and supportive (click here if you want to see another entry about how disgustingly cute we are), but he obviously can't be there for me every minute of every day. If you offer to do things for me, like drive me to a doctor's appointment on a day when I can't drive, or to pick up medication from the store for me (or even littler things, like a snack or a book from the library), that is really touching. I may never take you up on the offer (for whatever reason), but simply offering to do that does make me feel like I have a strong support system.

Don't live close enough to me to do that? Little things help as well. Email me some cute pictures of animals, or play silly little games with me (like Words with Friends). Send me a letter  or a nice email. Recommend books or TV shows to watch. Or something. Just letting me know you're thinking of me helps. However...

4) Don't be mad when I can't do things or don't respond. I read all the messages you send me, I promise. I just don't always have the energy to respond. To you, it may not seem like a lot of effort, but when you only have a few spoons left in your daily energy level, everything seems much more difficult. It's nothing personal, I promise.

On that vein, if you invite me out to do things, and it seems like I'm always saying no...I'm sorry. Again, don't take it personally, I just don't always feel capable of going out. Same goes for if I agree to do something, and then flake out later. I probably feel awful about it, but it's just not possible sometimes.

5) "But you're well enough to do x, why can't you do y?" Some people think that if I'm able to play video games or tweet or update Facebook, I should be well enough to do...I don't know, anything else. This is not always the case. Guess what, I can do almost all of those things from my bed or the bathroom. Or if I am capable of playing Lord of the Rings Online (which you should download; play on Silverlode and I'll send you my character name and we can be buddies), can't I go do something else? Turns out, I can play video games just fine if I'm on heavy painkillers. It doesn't mean I can go drive a car or go out to dinner or hang out with you otherwise.

6) "Are you addicted to painkillers?" / "Wow, I wouldn't want to be on such heavy drugs for such a long time!" Cool, well when you have a painful chronic illness, you can deal with it in your own way. If you choose to abstain from painkillers, great, good for you. That doesn't make me a bad person for needing them. 

7) Respect my privacy. I don't always want to talk about it. I don't always want to tell you all the intimate details of my bodily happenings. I'm a fairly open person, but sometimes, I just really don't want to talk about it. If I say I'm not feeling great, you ask for details, and I'm vague, don't push it. If you do push it (or even if you just ask), and I say something like, "Yep, it basically feels like there's lava coming out of my butthole," don't get mad at me for grossing you out. You asked. (Also, you think it's gross hearing about it? Try living with it.)

(PS, anyone who say it's "unladylike" or something to talk about "gross" things like my bowel movements can fuck right off, for several reasons.)

8) "I have [temporary minor condition]. I totally know what you're going through." This one might be the one that makes my blood boil the most. Oh, wow, you get diarrhea on occasion, just like every other person on the planet? Gosh, you must know exactly what it's like being me! How about that time you had to go the doctor every single week for several months for invasive, painful, and annoying tests? And what about that medication you had to be on that caused suicidal thoughts? And how did you deal with that time that your incision site from your major surgery got infected and your doctor had to cut open your stitches and drain out the pus before your pain meds even kicked in? Oh, you mean you just took some Pepto-Bismol and you were fine a few hours later? Yeah, those things are totally comparable, good call.

(By the way, all actual things that have happened to me in the past ~6 months.)

9) "My family member had that, and they're fine now. Why aren't you?" Wow, I wonder if it has anything to do with the fact that people's bodies are different and illnesses present differently in different people? Think about all the people you know who've had cancer. Probably some have survived and some have not. Have you ever gone to a funeral of someone who died from cancer and said, "Well my aunt survived breast cancer; why did your mom die from it?" 

10) "Have you seen a doctor?" / "Why didn't you go to a doctor sooner?" To remind you, you don't own my body. Secondly, do you know how expensive doctors are? I couldn't afford to see specialists until almost a year after being employed and on my own insurance. Even now, if I didn't have a partner who had a good income, I would not be able to afford treatments. Every time I go to the doctor, my copay is $50 because I'm seeing specialists (even after I've met my deductible), not to mention the pay I lose from being out of work for weeks at a time. Oh, and add on top of that all of my prescriptions. It's classist to assume everyone can afford seeing a doctor regularly when they are expensive as fuck. It's not like when you have a virus and can stop by the doctor, get some medicine, and bam, you're done. It's a constant process.

But also, yes, I have seen a doctor (many, in fact). Not that it is really any of your business.

11) Have you tried X therapy? I haven't used it, but this totally-not-sketchy website said it's great!" Ulghsldkghsdlgkhdslhgsdlghsd. Why do people think that an article they once saw on Cracked.com is the same thing as actual advice from a medical professional? 

There is a caveat to this, being: if you have the same disease as I do and there's a treatment you tried & liked, you can suggest it to me. However, this does not mean a) you can be pushy about it or b) that it will automatically work for me. Just saying, "Oh, have you heard about this new treatment where they put fucking gross parasitic worms inside your body to help cure your disease? My doc recommended it and it helped me a lot." is good enough. You don't have to tell me to do it, because I'll probably look into and talk to my doctor about it. We can talk about stuff, you don't need to try to guilt me into it. Mainly because...

12) YOU ARE NOT A DOCTOR. And if you are, you aren't MY doctor. I know you have good intentions, but stop. Just stop.

13) Suggest I eat more veggies / exercise more / sleep more. You know what, you're absolutely right. If I just eat more organic vegetables, work out 30 minutes a day, and get 8 hours of rest a night, my autoimmune disease will just disappear!! Golly, why didn't I think of that before?! You are a genius and have solved all of my issues, congratulations! Have this cookie. 

14) Let me be scared. It isn't your life on the line. Encourage me, support me, but don't tell 
me to "not worry." That is literally the least helpful thing you can say to me. Try saying instead, "Your doctors are very competent, but I can understand why you'd be scared. If there's anything I can do, let me know."

This list was originally going to be much shorter, but I tweeted about my rage and a few other people with chronic illnesses chipped in, and so I added a few more things. If you have a chronic illness, please feel free add your thoughts.

And remember, I don't speak for all people with illnesses. This is just me, and if other people with long-term medical issues relate, feel free to share it.

Edit: I wrote this with physical ailments in mind, but I think a lot of it can apply to people with mental illnesses as well. Just because an illness is invisible doesn't make it any less real, folks.

How I Got Engaged

So, I feel like I've told everyone in the world, but in case you don't know, I recently got engaged. :)

My friend Amanda made us this custom illustration, and I cannot get over how incredibly adorable it is. If you'd like to see more of her work, check out her blog.

So some backstory: Sean and I met about a year ago at a Reddit r/Columbus meetup (that I hosted, since I had just moved to the city). We had so much fun at this meetup that we decided to make it a weekly thing, and thus Bar Thursdays were born.

See, we even sat at the same table :)

I don't really drink, but it was fun to meet up with people every week (for a couple months we played trivia, which I enjoy quite a bit). Sean and I played on the same trivia team quite a few times, but we weren't particularly good friends until I saw a post on r/Columbus about a David Bowie movie that was showing at a local theater. As I was leaving the meetup (early, because I am a fart), I asked if anyone wanted to go see the movie with me. Sean said, "Sure, I'll go see that," and we made plans to get dinner and go see it.

We met at the Blue Danube, which, as Sean describes it, is a place where you can "get a burger and it won't kill you." Take that as you will. His friend Bart joined us, we had a nice  dinner, and Sean and I went off to the movie. We sat down and watched it...and sat in silence for the entire movie. Turns out, the movie is awful. We both hated it. I wanted to start cracking jokes within 10 minutes...but I figured Sean was enjoying it, so I kept my mouth shut (turns out, he felt the exact same way). The movie ended, we walked out, and just, "So...that was pretty awful, huh?" and had a good laugh over how bad it was.

We had a casual friendship after that, grabbing food here and there, texting once in a while (one of my favorite interactions was that he texted me on Thanksgiving to let me know that the undefeated Packers were winning, and not realizing that he knew almost nothing about football, I replied, "Uh, obviously." I didn't know he was trying to impress me at that point. :)...but then two things happened that solidified our friendship.

The first was a minor emergency that I had. Of course, I call it a minor emergency, anyone else would...probably not call it that. It was November, and since I had moved in to my apartment, my lock had been only working sporadically. I got to my door and couldn't get it open...so, of course, I started crying. I was new to the city, didn't have many friends...and felt very, very stupid for not being able to get my door open. I called a friend of mine who only lived a block or two away, and he didn't answer. I started to panic some more, and mentally ran through a list of people I could call who would help me and who wouldn't mock me terribly for being unable to get my door open. Sean was the only person I could come up with. So I called him, crying, and he agreed to come right over to help me. He finally showed up (I called at 1 PM, so, naturally, I woke him up and he had to shower), and it took him about 30 seconds to open my door. Simultaneously humiliated and relieved, I started to cry. Allowing me to save face, Sean offered to take me to lunch. I had errands to do that day, but I knew I wasn't going to get anything done because if Sean left I'd just cry and hug my cat, so we went off to lunch.

At lunch, we discovered our shared love for Lord of the Rings. So we planned for the next weekend to be what we call "Steak and Lord of the Rings Day." Sean and I went to the store and bought supplies for cooking steaks, then sat down and watched the Lord of the Rings movies (we only manged to get through 2 of them, but don't judge us). It was fun, and it was that day we really went from being "someone I know from the internet" to "friends." It's amusing to me that this was our solidifying moment, especially since we're both vegan now (but don't worry, we still love Lord of the Rings). There was a Republican party debate on that night, which I wanted to watch and live tweet, but Sean was invited to a party, so he left to go do that. (The funny thing is, both of us were shocked that we didn't want to do the thing with the other person-- but I still give him shit for not sticking around to watch the debate with me, because I still think watching a GOP debating is more fun than going to a party.)

After that, we started hanging out pretty frequently, drawn together largely by a love of food and a hatred of eating alone. Sean took me around the city, showing me his favorite restaurants, and we got to try some cool places together.

We very rarely made plans, and I would often be at work and think about how I wanted to relax alone that night...but then as soon as I got home from work, I'd text Sean and suddenly he'd be over, and we'd be watching Parks and Recreation, or playing video games, or just talking. We went to see Fun. together, and Radiohead, and we went to DC together for the documentary that I'm in. He also took a day off work to take care of me after I had a colonoscopy.

About a week before SSA Con, power went out in most of Columbus, which included my place, but not his. He invited me over to crash the night it happened, but I was stubborn and refused...until the next morning, when I woke up and it was 90+ degrees in my apartment and my cat and I were overheating. We spent the day in his AC'd apartment...until that night, when I ended up having a super bad Crohn's flare up and was hospitalized. They sent me home around 2 AM, with the warning that if I couldn't keep food down, I should come back. Of course, the next day...I was in Puke City. Back to the ER we went!

I was sitting in my hospital bed, waiting to be seen by a doctor, and holding a puke bag in front of me. I was pretty miserable (being in the hospital, away from family...kind of scary), I was crying and I said, "I'm sick and in the hospital and there's no one in this town who loves me." (because I'm a whiner). Sean said, "But I love you." And then he looked away, naturally. So he didn't realize that I said, "I love you, too" back to him...and I semi-whispered it...we'll say it was because my throat was raw from vomiting, but maybe I was a little nervous, too. Then we had that awkward (or adorable), "Oh...you didn't hear that, did you?" "Wait, what did you say?" conversation...it was all very cute. :)

Once Sean and I started dating "officially" (as in, made it happen on fb), he moved in, and of course we started talking about marriage (as you do when you just start dating). It honestly made things easier, because at that point we were at one place or the other every single day, and it was getting difficult to cook because we had to keep track of where certain things were when cooking).

We kind of both knew we wanted to marry each other, and we'd often make jokes about when and where we'd propose to each other, or how we'd do it (sort of like Jim freaking out Pam on The Office by fake proposing to tie his shoe, etc.). We even went to the mall one day and looked at rings (and commemorated it by getting "just ducky" photos). The discussion turned to which one of us was going to do the proposing-- and Sean said he'd like me to do it. So, I started planning.

So, fast forward to now. If you read my previous entry, it's about my surgery (which went mostly well, save for a few hiccups in the post-surgery recovery). If you were following twitter or FB, I mentioned that the person to see for updates was Sean on twitter.

I woke up from surgery, and they kept me in a shared recovery room, which apparently made me very agitated (I was coming up from anesthesia...keep in mind that I don't remember any of this, it has just been relayed to me). They moved me to my single room, and my parents and Sean were sitting around the bed. Apparently I was very out of it, and my parents said they were going to go back to their hotel room to rest while I slept off the anesthesia (since my parents were nice enough to come down to Ohio from Wisconsin for my surgery).

I guess this upset me a lot, and I demanded (in a semi-conscious state) that they stay. Confused, but concerned for me, they agreed. Less than five minutes later, I told them I wanted them to leave the room. They said they would go back to the hotel room...but I said that wasn't okay. They needed to leave and come back. I kept suggesting that they go to the cafeteria or go for a walk and come back in a 20 minutes. Seeing how adamant I was, they agreed.

When they left the room, I turned to Sean (who had been diligently sitting at my side, holding my hand), and told him how much I loved him, how much he meant to me, how he was the most important person in the world to me...and then I asked, "Will you marry me?" and he said yes, and we kissed, and it was awesome. :)

Except for...I just had Sean proofread this entry, and he said that's not how it went down at all.  Here is a more accurate summary from someone who was there and NOT waking up from anesthesia:

When they left the room, I turned to Sean (who had been diligently sitting at my side, holding my hand), and said, "I gotta ask you a question." (Keep in mind, I am not saying this very clearly, because, you know, drugs.) Sean humored me and said, "Okay..." and I replied, "Will you marry me...for real?" Sean said, "Of course." This is almost too embarrassing to write, but for the sake of honesty (and hilarity), I'm going to tell you. I then asked, "Was that a good enough proposal?" Sean laughed and said, "of course it is." I then druggedly suggested that he tell my parents when they come back, and when they did, we both blurted it out.

Now, remember that story, and remember that this was my face when I woke up from anesthesia:

...and he's agreed to marry me. :)

I have no idea what is wrong with him (okay, well, actually, I have a few ideas), but I couldn't be happier. :)

Edit: Oh, and the funniest part is...a few days ago, I asked Sean if he was okay with how we got engaged. He said yes, because he could tell I had been planning it for a few days...it was like the "porp." If you don't get that, read this: http://hyperboleandahalf.blogspot.com/2010/09/party.html :)

Hey, I'm getting surgery!

So, if you follow my Twitter or Facebook, it's no secret that I was diagnosed with Crohn's disease in May of this year (if you don't follow either of those and/or you're new, surprise! It was a pretty good birthday present.).

Turns out, Crohn's Disease is pretty awful. I'm going to write some gross stuff about it, but for your benefit, I'll highlight them so you can skip over the gross parts if you want to. But if you don't want to read anything of grossness, you probably shouldn't read any of this. Just skip to the very end.

So, I went to the doctor in April because it hurt and bled when I pooped. Diagnosed as anal fissures (link-- NSFW photo in the link), but the doctor noticed some inflammation at the top of my colon or rectum, so she scheduled a colonoscopy as well.

So in May I got my colonoscopy, and they found a bunch of gross stuff, like inflammation and ulcers and ick, so they scheduled a small bowel follow-through in June, where I had to drink barium and then they x-ray'd my guts and watched it go through. The doctor look at my x-ray and said, "Yep, textbook case of Crohn's." (Fun fact: You poop white after drinking barium. Or as I like to call it, ghost poop!)

July rolls around, and I was planning the SSA's annual conference, where 300 student leaders were expected to show up from around the country. The weekend before the conference, I went out to dinner with some friends...then went home and sobbed from pain, fever, and nausea. I finally called the 24 hour nurse line, and the very helpful nurse informed me I was most likely having a Crohn's flare up, and I needed to go to the ER right now. Went to the ER, got some pain meds and Prednisone, discharged at 2 AM and told to take it easy, but to come back if things got worse.

Of course, they got worse. By 6 PM the next day I hadn't been able to keep anything down (including water), so back to the hospital, this time getting admitted. Ended up spending 4 days there, which was awful, but I got a lot of tests done, a bigger dose of Prednisone, and I also learned that the Ohio State Hospital does not, in fact, know what vegan means, nor do they have any vegan options (they do, however, think turkey burgers are vegetarian and beef or chicken broth are acceptable options for everyone).

Fun (less sad) side story: When I was in the hospital the 2nd time, I was all pukey and gross, and I said something about how I just wanted to die. Sean said, "You can't die, because I love you."...and then looked away. So when I said, "I love you" back, he didn't hear (because my voice was hoarse, and maybe I was quiet because I was nervous!)...and that was a cute and awkward thing. But mostly cute. :)

So, fast forward to early August-- I had been on a prednisone taper to help shut down the flare up, but turns out it didn't help at all, so my doc scheduled me for another small bowel follow through, and the results of that would determine whether I needed surgery or not (spoiler alert: the answer is yes, I need surgery).

In the meantime, since I still had the anal fissures that I originally went in for, I had to get surgery to take care of those. That happened this past Monday, and it was pretty awful. (This is super gross, but my butt basically won't stop bleeding so I have to wear a pad all the time, and it feels like fucking shards of glass passing through my asshole when I poop. I have cried almost every single bowel movement since the surgery. Oh, and I fill up the toilet with blood, that's fun. I also need to take a sitz bath after every time I poop, or just three times a day, and those help...but mostly, the pain is outrageously awful. I do not recommend having anal fissures for 3+ years and letting them get so bad you need surgery...but hey, what can you do when you can't afford healthcare, amirite?)

So, here I am, getting surgery on Tuesday, August 28th. I'm getting a laproscopic colectomy done. It's good that it's laproscopic, because recovery time will be much quicker than if they had to open me up (although, if something goes wrong or there's more diseased tissue than they thought, they will have to open me up). But yeah, basically they are cutting out my terminal ileum and some of my colon, and they're gonna sew the parts together and hopefully that will help make things better. 

So...that's about where I am now. Trying not to freak out too much. Tomorrow (Friday) is my last day of work, I have Monday to prepare for the surgery, and then I'll be on leave from work for 4-6 weeks (at least).

So, what can you do to make me feel better? Here are a few options!

1) Recommend books, tv shows, movies, documentaries, or video games to me. You can edit this sweet Google Doc! https://docs.google.com/spreadsheet/ccc?key=0AssJ88DUkGJUdEdhbVJWTjJoTWRoejVodUJ6RFJiakE

2) Help create a Spotify playlist! http://open.spotify.com/user/1243536065/playlist/3K82DOQt6dSNyKoWp1QmzH I like most kinds of music, but please nothing too heavy-- really, no metal or really hard rock. I think I'd prefer chill music, but upbeat is okay...I just will probably be in bed, on drugs, and metal/hard music sounds kind of bad at that time.

3) Send me a card! You don't even have to mail it! I'll be in the hospital for about 5-7 days (from Tuesday, August 28th - Sunday, Sept. 2nd), and if you go to this link: http://www.mountcarmelhealth.com/patient-resources/e-cards.html, you can type out a message to me and they'll print it and hand deliver it to me. Address it to Sarah Moglia (no nicknames or they won't be able to find me) in Room 325. I'll be at Mount Carmel East. (Please don't write anything offensive or gross-- it will be printed and read by volunteers.)
(If you do want to go above and beyond and send me something in the mail-mail, just message me on FB or twitter and I'll get you my home address. I will be in bed for 4-6 weeks after I get out of the hospital, so no rush, really.)

My Week at Camp Quest

Well, I spent the last week at Camp Quest Michigan.  What is CQ, you ask? Well, it's an awesome summer camp for children of freethinking parents-- no, this is not an atheist summer camp, just a camp where kids can learn about science, critical thinking skills, and also do all sorts of fun summer things, like swimming, rock climbing, horseback riding, etc. 

We did a lot of cool things.  The first night, two campers/CITs pretended to be "minor deities" to explain the Invisible Pink Unicorns that live on the campgrounds. You can't see them, or hear them, or smell them, or taste them, or feel them, and they don't leave any footprints, but we know they're real because we have a book that says so, and we dare you to prove that they DON'T exist (this is an actual dare-- if anyone can prove that there are no invisible pink unicorns on camp, they will win a $100 bill from pre-1957 when "in god we trust" was added to currency).

We also made tons of s'mores, duh. And since I'm vegan, I got special vegan marshmallows and chocolate (cause I don't really want dead cow parts in my marshmallows).

And I made delicious s'mores. Mmmmm.

Camp Quest Michigan happens on a 4H camp, so there is camp staff there to run activities with us. It's a little different than most Camp Quests, as I've been told, and a little bit more on the physical activity side than other camps. Still, fun!! We did Socrates' Cafe, which is a philosophy discussion-- ours was a lot about the morality of punishment/jail/murder/death penalty-- heavy stuff, but these kids are smart. We also did drama and made our own movie, which was hilarious. There was also canoeing, swimming, rock climbing, zip lining, horseback riding, archery, and a high ropes course (which I completed, although fairly terrified-ly. So scared, in fact, that a camper let me skip him in line to go back down to the ground. He was fine, I was the one who was freaking out. Haha.).

We also had a carnival, where campers earned tickets for completing games. If they earned 100 tickets, they could "dunk" a counselor of choice (by dunk, I mean pour four buckets of ice cold water on). Guess who got picked? (Okay, actually every counselor did, but I'm gonna show you my photos.)

Ice freaking cold.

Jeff Duncan, the camp director, also got dunked.

There were lots of bugs and toads to be found. The girls from my cabin (see below) found a couple of Preying Mantises (you can only see one in the photo). They were really curious about stuff and it was awesome.

During archery, we were encouraged to draw monsters and then they were stuck onto the target board. Only one person hit my group's monster...right in the eye. Guess who? :) (To be fair, I used to be an archery instructor, so I had a lot of time to get good at it. The kids did super well for their first day.)

We also had skits and song parodies. A group of girls did a parody of "Sexy and I Know It." They called it "Thinking And I Know It." It was hilarious. The lyrics were something similar to "Thinking and I know it...girl look at that atheist." If I can get more of the lyrics, I'll post them. I was in stitches, though.

There was also a LOT of "Call Me Maybe." Almost every camper got up to sing along with it at the end of the talent show. :)

Weirdly enough, I think my favorite part of camp was when we went canoeing, we were able to get off on a marshy island and explore and I was able to teach campers a lot about lakes and the creatures that live in that area. It was an unexpected teaching moment, and I really enjoyed sharing things I learned as a kid and from my Environmental Science classes. The kids loved it, too. There's something really cool about teaching kids things when they don't think they're learning. :)

There were a bunch of things that I'm probably forgetting, but it was a long week and I'm still recovering. I may add more if I think of it. 

In summation, Camp Quest is awesome. They also have a super awesome matching challenge going on, so if you think supporting kids in indoctrination-free environments is important (and it is), you should throw a few bucks their way.

If you don't already "like" CQ on FB, you should do that (and also follow their twitter: @CampQuest). 

LIVESTREAM TIME

Okay, it's livestream time. 9 minutes until I start, so I'd better chug this out quickly.

Basically, I've already raised $1,000. Which is absolutely awesome! However...

The rules have changed.

Okay, there was really no need to bold that, I just wanted to be dramatic. Anyway, it's been a really long week at work, and next week is also going to be long (turns out I'm sort of planning a conference that's in like 3 weeks), so I really can't do a 24 hour livestream. Okay, well, I can try, but I'm putting a higher price on it.

 The new goal for me to do 24 hours is $2,500. Part of the fun was going to be raising the money during the livestream, and if I've raised it all before it even begins, where's the fun in that?

So, all the things you can "buy" to make me do are still listed on my last blog, and the donate button for me is still here.

As far as the day's plans...I'm winging it!

At 1 PM Eastern, I'm declaring it Cat Parade, so if you want to show off your cat, befriend my on Google+ (my email address is Sarah.Moglia@gmail.com) and we can do a hangout of CATS.

The Sarah Power Hour will be determined when my other half wakes up and she decided she wants to jump in. Or whenever I text her frantically to wake her up and say HELP I NEED YOU ON HERE I'M GOING CRAZY. Any other things will happen on the fly.

And now, the final thing...here's the link to my livestream: http://www.ustream.tv/channel/ssa-week

Update on SSA Week Livestream!

Okay everyone! If you aren't up to speed on what SSA Week is, click here, and if you don't know what my contribution is, click here.

On Saturday, June 16th, I will be livestreaming my life from 9:00 AM - 9:00 PM EST in order to raise money for SSA Week.

I did a test run of my livestream tonight for an hour and I am little daunted at doing 12 hours now. But!! I love the SSA, and I made a commitment, so I am going to do it.

Even more, if I raise $1,000 on my personal fundraising page, I will livestream for 24 hours. So....that's a lot of sleep-deprived talking to the internet.

In order to help rack in the donations, I am offering to do things for money. I will probably pretty much do anything for donations, with a few caveats:

1) No nudity (you perverts).
2) I will not consume something non-vegan (I recently went vegan, so yeah). (Also, was recently diagnosed with Crohn's disease, so eating/drinking challenges may make me sick and probably should be avoided. :/ )
3) I reserve the right to say no to any request.

Anyway, here are some ideas!

For $5, I will lip-sync to a song of your choice.
For $10, I will actually sing a song of your choice (VERY poorly, might I add-- I'm no Crommunist).
For $15, I will sing AND dance to a song of your choice.
For $20, I will make up and sing a song about you (right then and there! Live!).
For $30, I will hand write you a letter and mail it to you.
For $50, I will go on a 'date' with you (if you're in Columbus, a for-real date. If you're going to TAM or any other conference that I will be at, then we can meet up there. If you're not anywhere near then, then we can have an hour long Skype date or something. :)

Other suggestions? Keep in mind, if y'all don't suggest things, I am probably just going to sing "Jesus Christ Superstar" songs and "Call Me Maybe." So you probably want to suggest things and donate.

Also during the livestream, we're going to have a cat parade (where we go into a Google+ Hangout and people show off their cats). If you want to show off your cat, let me know!

I'm also going to have my BFF @ologies join me for the SARAH POWER HOUR, to help promote the Legion of Sarahs! Also, for entertainment, because two Sarahs are better than one.

There will also be other guests of honor, so keep your eyes peeled for announcements!!

I hope you're excited! Remember: if you want 24 hours of MY LIFE, BROADCAST TO THE WORLD...you should donate! (At the time I published this, I have raised $330-- 33% of my goal.)

Update!!: It has now been decided that if I reach $750 by Saturday at 9 PM, I will buzz all my hair off. If I reach $1,200 by that same time, I will get a mohawk AND maintain it for a month. :) So if you want to see me with funny hair, get donating! (FWIW, this is what my hair looks like right now.)

Update #2!!! Alright, so since a date with just me is $50, for a mere $100, you can get a date with both me AND Sarah (@ologies). Two Sarahs for the price of...two!! What a deal! And we'll both be at TAM, so think of a night in Vegas with these two beautiful, smart, witty, skeptical ladies.

SSA Week!

So! As you all may know, I work for the greatest organization in the history of the earth (I would say the universe, but I feel that's a bit presumptuous considering if we don't even know if there's life out there). Anyway, yes, I do work for the Secular Student Alliance, because somehow my life is awesome.

In order to continue being awesome by doing things like providing travel grants to students to go to conferences, and sending super cool speakers to their campuses, hosting a kick-ass annual conference, providing hands-on support for planning events, talking to resistant administrations, should I go on? Well anyway, in order to continue doing that, we need money! That's why we're having....SSA Week!

Yay!! So a whole bunch of people are doing things like a blog a thon...and I want to help, but there's going to be a LOT of stuff to read. So, what I'm thinking is I'll do a 12 hour long livestream of my life. I have to come up with details, but I'm thinking I'll do requests of things for some small amount of money...obviously you can come up with whatever, but I can answer questions, or dance to a song of your choice, or tell you my most embarrassing memory...or whatever! You're creative, you can come up with something.

If I reach a certain goal by the end of my first 12 hours, I'll stay live for 24 hours. Trying to decide what my goal should be...thinking $1,000? Maybe $2,000? I have no idea if I'll make more than $5, so I don't know what's a reasonable goal or not.

Anyway, there will be some special guest(s??) joining me during the livestream-a-thon, so stay tuned! Maybe I will announce them...maybe I won't!! Who knows?! (A lot of this is going to depend on all of your reactions and suggestions. :)

What do you think? Any suggestions for what I could do? Keep in mind, my plans so far mostly include: dancing to Queen songs, showing off my cat, ranting about varying topics, chatting with my special guest(s)...you know, an average day in my life.

I'm not sure how I will do this yet. I've been looking into UStream.tv and Google+ hangouts...I'm not sure. If anyone has any experience with this, I'd appreciate any help at all! I don't know if there are rules or time limits on any of those services where I'd get kicked off for being on too long.

Anyway, I'm super excited to do this. I hope you're excited as well. :)